June 4, 2024

SUNY Empire Alumna Raises Awareness of Huntington's Disease

(SARATOGA SPRINGS, NY) — Tanita Allen ’17, ’22, an author and advocate, recently spoke to students at the Brown University School of Public Health about her battle with Huntington’s disease (HD).

Her experience is chronicled in her memoir, “We Exist.” The book is about Allen’s struggles with HD and the role that racism played in delaying her diagnosis as well as the environmental factors that accelerated her disease progression. She also discusses her determination to live a life of joy and purpose, which includes raising awareness about HD.

HD is an inherited, progressive neurodegenerative disease that causes uncontrolled movements, cognitive decline, and behavioral changes. 

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